Shower

There were fun times in my therapy, I had to make them happen to keep myself sane. My therapists made an easy target because I worked with them everyday and we built up quite a rapport . I’d been on the main floor about a week, my catheter had been taken out and I was getting used to the wheelchair. I was beginning to get comfortable, maybe a little too comfortable with my situation and I was beginning to smell. You’d think that that would be the least of my problems but you’d be wrong. One weekend while waiting for breakfast to be distributed I was wheeling myself down the hall looking for the linen closet. When at last I found it I quickly grabbed some towels and took them back to my room. Then I waited until rounds had been done, breakfast trays had been collected and the nurses had settled into their morning routine. Then I close my door, collected my towels and wheeled myself into the bathroom.

I’d spent the day before checking out the shower, how it worked and how the bench fold ed down from the wall. The only thing left was to get myself maneuvered from the wheelchair onto the shower bench. Never for a moment did I think of removing the side of my wheelchair to make things easier, instead I locked the chair down and lifted myself onto the edge of the bench and then maneuvered, with only one hand working, I got myself onto the middle of the bench. When the water was just right I began my wonderful shower, maybe the best shower of my adult life and soaped myself well. With that one hand I got every part I could reach and then some. Then I took the time to dry myself and then I was stuck. With only one side of my body working and that side towards the inside corner of the shower stall I really had to figure my way out and without tipping over. But somehow I managed to get back into my wheelchair and I felt so good for having accomplish the task of getting myself clean. The next day the nurse asked me if I wanted to have a shower and I though why not and promptly got into trouble. This time I couldn’t stop myself from tipping over onto my bad side and almost fell off the bench and to the floor. I was shocked into realizing how precarious my state was and now I was very leery of taking a shower at all.

A few day later it was posted on my wall that I’d be learning the next day how to get into the shower stall and could finally take a shower but I’d be accompanied by a therapist. Somehow the idea of being “accompanied” by a twenty-four old therapist didn’t sound attractive in the least. My therapist was a lovely girl I’d come to rely on to help me with my exercises and we’d gotten close. So dressed she showed me how to pull up the side of my wheelchair and how best to maneuver myself to the bench. I practiced two or three time til I had the thing down pat and then we were ready for my shower. It wasn’t the way I’d envisioned at all but boy was it intimate; I had to strip bare ass naked under her too watchful gaze and get myself situated and she pointed out what I was doing right and wrong. She was so concerned that I’d topple over and she didn’t want that to happen to me. I was grateful but I was resentful too that I had to have her watch me while I took my shower like a child but hey, when you’re in the condition I was in you take all the help you can get.

But..., but I was determined to get back at her somehow and I got my chance when my friend Lorri came to take me home from the hospital. She had to go through training with me so she’d know the right way to handle me, to learn what I knew but had a tendency to forget. So when Lorri show up I introduced her to my therapist as the girl who watched me shower! And then I sat back and laughed as my therapist blushed and explained the how’s and wherefore before Lorri told her she was a nurse too and had seen so many bare assess that she couldn’t count. It was almost as good as the shower.

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My friend Traci

Exercises

After my formal therapy was over I was at a loss for what exercises I could do. For the past eighteen months I had a set routine that I executed every other day, now I was unsure what to do. I really felt a type of rejection and a emptiness in my soul and in my life. I had a nice graduation from therapy and a even nicer certificate to commemorate my having survived hours of every know torture to humans, some they had to work at thinking up. I decided that since I was going off to visit my friend in the northeast I’d let myself rest and catchup on myself. After all that therapy I needed the time to think and get organize for my trip. I had a full list of exercises I could and was supposed to do but I couldn’t get interested in them for some reason, they just didn’t feel right.

By the time I left I was ready for a change of scenery and a change to my lifestyle too; I was ready for some togetherness. We started by taking long drives in the country to acquaint myself with the territory, north and south, east and west; where I was in relation to where I was now living. Long lovely drives into the countryside seeing places I never been before but would see again. I was so happy to be away from the heat of Texas and away from therapy and my doctors and the routine of my life. Letting my friend show me her part of the world, the little wonders she’d know for a lifetime and could now share them with me, the little nooks and crannies of her hometown and beyond. But my aliments followed me and tortured me just the same.

Just walking up the stairs exacerbated the pain in my hip, my buttock to be precise. I went for therapeutic massage and that did relieve my pain but it was climbing the two flight of stairs each day that really helped. I started helping my friend around her garden at first, nothing major just emptying each pail as she filled them with weeds and cuttings. Then we got to mulching dragging each bag out of the car and back to they were needed. Little by little I was getting more in toned so then I began taking longer walks. By the time fall came I was ready to try raking, just yards at a time then sit and rest, then rake a bit and rest again, I only finished the side yard but I felt like I accomplished something. I so very slowly was getting stronger and more toned, I was walking better and longer. Little by little each household chore that I did built up my strength. Balance continued to be an issue over uneven territory but a walking stick helped. Now I was learning a new routine to my day, a routine that I could follow when I returned home and for the rest of my life really. I could feel myself getting better and it was long after the eighteen months that my doctor had warn me against.
Walking at home presented a problem at first, too many loose dogs in the neighborhood. Too much stress for me to cope with on top of an already stressed system, so I stopped. At least in the neighborhood, I started walking in the park where there weren’t any dogs. The I started taking bags along on my walks and started picking up trash. Don’t laugh it was excellent exercise bending and walking, I’d do three bags each time I walk and it cleaned up the park too. I started cleaning up my apartment too, dusting the floors and washing them. It like to kill me at first but it kept me in shape and worked my muscle too. I even learned to work my arm in cleaning the mirrors in the bathroom and cleaning the tub. Worked every muscle in my body little by little..., and I never had to pay a gym either or a cleaning lady for that matter.

I’m sharing some tips I learned the hard way, never but never give up. Keep inventing ways to work out that you can learn at your own pace that mean something valuable in your life. Instead of learning to type with two fingers try to type as always, so it’s not easy, so what. Learn to push yourself to do things to try to get back to where you were before your stroke or head injury. I feel that my stroke was a landslide in my brain, all the pathways I knew over a lifetime were blocked. It wasn’t my hand or leg that was injured it was my brain. I had to relearn all those pathways I knew so well. Even if you can’t make the connection I feel the road to recovery begins with the will to survive. Each step to normalcy, each little step that you can accomplish leads to bigger steps and those steps will lead you somewhere you need to be.

B-Roll

Next week or two I’m supposed to do the B-roll of my testimonial, my fifteen minutes of fame is still two months away but I want to be ready. So I’ve been thinking a lot about what I want to say and why. After I had my stroke I couldn’t think, things just came to me with no preconceive notions. By the time I was able to take my cooking class I got angry about it but didn’t quite know why. I just knew that my way out was though my strength and not by learning to be handicapped. I supposed that I knew instinctively that my muscles still worked, my hand, arm and leg weren’t damage the control for them wasn’t working correctly.

I always maintained that I had a landslide in my brain, as in any landslide the mountain that was me had collapsed and the pathway to “me” were blocked. I had to find a way to reestablish those connections again to make myself move as I used to. I needed to find a new path to me and to make that path(s) as smooth as possible; I was a child again learning to tie my shoes. The doctors weren’t much help either, the doctor is like a weather forecaster, he could tell me from his experience with others what my chances were but he couldn’t be sure one hundred percent. Nobody would know for sure until I did or did not recover. I had a lot to lose and I wasn’t prepared for that, I didn’t know any better so I just figured that I’d recover. Make no mistake it wasn’t easy or painless but it was either recover or live in a nursing home for the rest of my life. I chose recovery and I guess my stubbornness came to my rescue. I can be an obstinate son of a bitch, I want to do things the right way, my way.

So that’s what I did, I was more than willing to have help and guidance in my quest for me. But the more that I worked to get my strength back the more I knew I was on the right track for me. There were milestones along the way, markers for the progress that I was making. As each slid past I’d make up a new milestone, one’s that my therapist had to invent for me. I was a challenge for them, I forced them to think up new ways to help me and we both took pride in my progress along the way, my way back to me. Even as my progress took me past the eighteen month barrier that they had told me about I could see progress. I didn’t realize it at the time, several month would pass before I realize that I was still progressing. After almost two years and I started back to reading, my joy and pleasure was back and even my laugh was getting better but not the way I remember it. I still can’t sing, those who know me best say I never could but who know, I am hopeful.

And that’s what one desperately need hope, for the future and for the past. To get back to the old/real you. A you that you remember and are comfortable with, a you that fits your memories of you. A you you can be proud of, that you can say you made this happen. OK, so you had a stroke, a car accident, what ever it was that gave you the brain injury, you and you alone made it better, made it back to the old you. Never give up, work until it hurts and work some more. You are unique, you are the only you on the planet, there are no substitutes, know this and live life to it’s fullest. Did I mention never give up?

Birthday

Today I am officially sixty one years old and I don’t feel it. Yes I have ache and pains mostly from my stroke but I’m doing pretty well for a man my age. I must say I kinda surprised to be here, having escaped most of my follies relatively unscathed. In my youth, like all people I felt bulletproof and there weren’t many thing I didn’t try. I was really fearless or stupid, whatever you want to call it about my future. I didn’t feel the need to plan for my welfare or my health, I though I’d figure that out when I was ready. Well I’m ready now to find my way again and I have a hope for my future.

Last week I took a ride down to the sight of the new project that just fell into my lap. I was really impressed with the caliber of the people involved and with their drive and passion. They have a prototype built that has solar, wind and water build right in. Next month they plan a trip to Mexico to look at a site and make their plans to build a self-sustainable community. Very impressive in their scope and will bring a new quality of life to the local inhabitants. A totally green environment that will produce water for their crops and will recycle everything else they need. A very exciting project to be involved with. We even have on board someone to test the soil and suggest native plants that are apropos to the environment.

Of course this has tremendous commercial applications as well, they are in the process of getting the grants and funding that they need to make the technology work. That’s the point were I come into the project to document and to record there progress. I was down to photograph the prototype and the detail’s of how it was built. I shot the most important features of the construction as well as a general overview of the prototype and what features come with this particular product. Not exciting kind of shooting but eventually it should pay my bills. I’m looking for it to pay more than my bills really. I want to get back to shooting my model and creating my art. I have to find some way to sustain my art until it gets rolling and I get some regular clients. This was my plan for the future at the time I had the stroke but that event took up all the air in the room.

I was smart enough to see my age creeping up on me and at age fifty-seven I was starting to shift my work into the more artistic avenues. I could envision the time when I wouldn’t be able to keep up physically with working eight to ten hours a day at event photography. I was planning an orderly transition in life and the focus of my work. But my stroke changed my thinking overnight, I was left battling for my life instead. So many people have told me that I’m inspirational to anyone fighting my situation. Some have call my action heroic but I don’t feel that way at all. I had no choice in my fight, it was either sink or swim really. I could lay there in bed doing nothing or I could put one foot in front of another and get back the life I was used to living. The chose was stark, take it or leave it. I chose life and the pursuit of happiness. A couple of weeks ago I managed to get my testimonial recorded and in it I found a voice to speak to everyone who finds themselves in my condition. I found it important to give people hope and remind them that the doctors never know exactly what there patients are capable of overcoming in their desire to live a full and useful life again. Of course not everyone is as lucky as I am; some never recover and are left crippled for life. But that the way I feel actually, lucky. I am very lucky indeed.